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BiogenPricing change

Biogen submitted a substantially improved financial offer and lowered pricing terms for Skyclarys, securing reimbursement approval from Ireland's Health Service Executive (HSE).

What happened

Post: "HSE approves Skyclarys reimbursement for Friedreich's ataxia patients"

Source

RedditAug 25, 2026By u/JackmanH420

r/ireland

HSE approves Skyclarys reimbursement for Friedreich's ataxia patients

upvotes
181
comments
105

Extracted from these lines

  • [comment u/JackmanH420] It follows a substantially improved financial offer by drug firm Biogen to the Health Service Executive.

  • [comment u/JackmanH420] In a statement, the HSE said Biogen "has moved substantially from its previous position, and the HSE wants to express its appreciation of the flexible and constructive approach shown by the company."

reddit.com/r/ireland/comments/1vxx9qp/hse_approves_skyclarys_reimburs...Open the source

Comments on the post

5 of 105 comments
  • “It follows a substantially improved financial offer by drug firm Biogen to the Health Service Executive. In a statement, the HSE said Biogen "has moved substantially from its previous position, and the HSE wants to express its appreciation of the flexible and constructive approach shown by the company." The HSE Senior Management Team met this morning and said that following the "very differe”

    u/JackmanH420125 points · Aug 25, 2026View

  • “I think the most fucked up part of this story is how much the manufacturer was able to change their price once the HSE said they would walk away from the deal. The HSE is trying to balance an impossible task of cost/benefit for everyone. Manufacturers are just trying to squeeze profit out of dying children.”

    u/zanyhemline117 points · Aug 25, 2026View

  • “My cousin is a sufferer and we never expected it to be approved. We had a little cry together on the phone today, it's given her some hope for the future.”

    u/BlampCat31 points · Aug 25, 2026View

  • “Credit to the HSE and the Minister for Health for playing hardball and getting a better deal for the drug. This will deliver a major improvement to the quality of life to the citizens suffering from the disease. Pretty disappointing to see negative comments on what should be considered a very positive conclusion to this story.”

    u/InfectedAztec27 points · Aug 25, 2026View

  • “Welcome and great news, one of my brothers best friends suffers from Friedreich's Ataxia.”

    u/ChalupaBatmanMc0120 points · Aug 25, 2026View

Extracted by Autobound

From the Signal API record
Signal
Pricing change

What this signalsUser posts often show product pain before it reaches reviews or churn.

Subreddit
r/ireland
Stage
Confirmed
Event date
Aug 2026

The full record

From the Signal API record

Numbers

Mentions
1

Details

Timing
Completed
Category
Price
Link URL
rte.ie
Virality
Very high
Post kind
Link
Prominence
Core
Company's role
Subject
Signal category
Event

Topics and mentions

Topics

  • reimbursement
  • pharmaceuticals
  • pricing

Flair

  • Health

Products named

  • Skyclarys

Extraction

Sentiment
Positive
Detected
Aug 25, 2026
signal_type
reddit-company
signal_subtype
pricingChange

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The API returns more than this page shows

This page shows a preview. The full reddit-company record in the Signal API and MCP can also have these 8 fields. Some fields are empty for some signals.

Company

  • linkedin_urlValue in the API
  • industriesValue in the API
  • employee_count_lowValue in the API
  • employee_count_highValue in the API
  • revenueValue in the API
  • descriptionValue in the API

Signal

  • signal_nameValue in the API
  • associationValue in the API
Show the full JSONThe record on this page and the API request

GET /v1/signals/de89dff6-add3-58f8-a629-676215646d1f returns this record as JSON. POST /v1/companies/enrich returns every signal for biogen.com.

{
  "signal_id": "de89dff6-add3-58f8-a629-676215646d1f",
  "signal_type": "reddit-company",
  "signal_subtype": "pricingChange",
  "detected_at": "2026-08-25T11:35:01+00:00",
  "company": {
    "name": "Biogen",
    "domain": "biogen.com"
  },
  "data": {
    "nsfw": false,
    "stage": "confirmed",
    "awards": 0,
    "timing": "completed",
    "topics": [
      "pricing",
      "reimbursement",
      "pharmaceuticals"
    ],
    "post_id": "1vxx9qp",
    "summary": "Biogen submitted a substantially improved financial offer and lowered pricing terms for Skyclarys, securing reimbursement approval from Ireland's Health Service Executive (HSE).",
    "category": "price",
    "comments": [
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5s77s5/",
        "depth": 0,
        "score": 125,
        "author": "JackmanH420",
        "excerpt": "It follows a substantially improved financial offer by drug firm Biogen\n\n to the Health Service Executive.\n\n In a statement, the HSE said Biogen \"has moved substantially from its previous position, and the HSE wants to express its appreciation of the flexible and constructive approach shown by the company.\"\n\n The HSE Senior Management Team met this morning and said that following the \"very differe",
        "posted_at": "2026-08-25T11:36:12.000Z",
        "author_url": "https://www.reddit.com/user/JackmanH420/"
      },
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5s9p26/",
        "depth": 0,
        "score": 117,
        "author": "zanyhemline",
        "excerpt": "I think the most fucked up part of this story is how much the manufacturer was able to change their price once the HSE said they would walk away from the deal. The HSE is trying to balance an impossible task of cost/benefit for everyone. Manufacturers are just trying to squeeze profit out of dying children.",
        "posted_at": "2026-08-25T11:51:04.000Z",
        "author_url": "https://www.reddit.com/user/zanyhemline/"
      },
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5seqym/",
        "depth": 0,
        "score": 31,
        "author": "BlampCat",
        "excerpt": "My cousin is a sufferer and we never expected it to be approved. We had a little cry together on the phone today, it's given her some hope for the future.",
        "posted_at": "2026-08-25T12:19:40.000Z",
        "author_url": "https://www.reddit.com/user/BlampCat/"
      },
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5sepu7/",
        "depth": 0,
        "score": 27,
        "author": "InfectedAztec",
        "excerpt": "Credit to the HSE and the Minister for Health for playing hardball and getting a better deal for the drug.\n\n This will deliver a major improvement to the quality of life to the citizens suffering from the disease.\n\n Pretty disappointing to see negative comments on what should be considered a very positive conclusion to this story.",
        "posted_at": "2026-08-25T12:19:30.000Z",
        "author_url": "https://www.reddit.com/user/InfectedAztec/"
      },
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5s8u9y/",
        "depth": 0,
        "score": 20,
        "author": "ChalupaBatmanMc01",
        "excerpt": "Welcome and great news, one of my brothers best friends suffers from Friedreich's Ataxia.",
        "posted_at": "2026-08-25T11:45:59.000Z",
        "author_url": "https://www.reddit.com/user/ChalupaBatmanMc01/"
      },
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5sjx9b/",
        "depth": 0,
        "score": 12,
        "author": "Much_Perception4952",
        "excerpt": "They used emotional blackmail to plough through the facts. This was only ever going to go one way when politicians who are ELECTED BY VOTES got involved. They're delighted to get the publicity. Skyclarys delighted with the massive profits they'l make.\n\n The government gave in on the fuel protests - costing taxpayers millions.\n\n They've given in on a drug that has little or no proven benefits becau",
        "posted_at": "2026-08-25T12:46:43.000Z",
        "author_url": "https://www.reddit.com/user/Much_Perception4952/"
      },
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5suuou/",
        "depth": 0,
        "score": 4,
        "author": "No-Animal1034",
        "excerpt": "Some good news for once.",
        "posted_at": "2026-08-25T13:39:59.000Z",
        "author_url": "https://www.reddit.com/user/No-Animal1034/"
      },
      {
        "url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/comment/p5sgvgq/",
        "depth": 0,
        "score": 3,
        "author": "Nua33",
        "excerpt": "Fantastic!",
        "posted_at": "2026-08-25T12:30:56.000Z",
        "author_url": "https://www.reddit.com/user/Nua33/"
      }
    ],
    "evidence": [
      "[comment u/JackmanH420] It follows a substantially improved financial offer by drug firm Biogen to the Health Service Executive.",
      "[comment u/JackmanH420] In a statement, the HSE said Biogen \"has moved substantially from its previous position, and the HSE wants to express its appreciation of the flexible and constructive approach shown by the company.\""
    ],
    "link_url": "https://www.rte.ie/news/2026/0825/1589064-skyclarys-friedreichs-ataxia/",
    "virality": "very_high",
    "post_date": "2026-08-25T11:35:01.000Z",
    "post_kind": "link",
    "sentiment": "positive",
    "subreddit": "ireland",
    "event_date": "2026-08",
    "post_flair": [
      "Health"
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    "post_title": "HSE approves Skyclarys reimbursement for Friedreich's ataxia patients",
    "prominence": "core",
    "source_url": "https://www.reddit.com/r/ireland/comments/1vxx9qp/hse_approves_skyclarys_reimbursement_for/",
    "entity_role": "subject",
    "post_author": "JackmanH420",
    "upvote_ratio": 0.95,
    "mention_count": 1,
    "mention_surge": false,
    "subreddit_url": "https://www.reddit.com/r/ireland/",
    "total_upvotes": 181,
    "comments_total": 106,
    "total_comments": 105,
    "event_date_text": "this morning",
    "post_author_url": "https://www.reddit.com/user/JackmanH420/",
    "signal_category": "event",
    "comments_included": 8,
    "products_mentioned": [
      "Skyclarys"
    ]
  }
}

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